How will you honor the “rarest” day of the year? Check out our cystinosis awareness giveaway. Sign up and...
Read moreBy Cystinosis Research Network
February 5, 2020
When it comes to Elle and cystinosis, “We continue to take each day dose by dose.” Hear more from...
Read moreBy Cystinosis Research Network
January 16, 2020
I do not have one story or just one person I can point out as a #GreatGiver. I am...
Read moreBy Cystinosis Research Network
December 3, 2019
The next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
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