We are ringing in the new year with three new volunteers who will serve as Directors on the CRN...
Read moreBy Cystinosis Research Network
January 12, 2025
With the hustle and bustle of the holidays, the new year can certainly sneak up on us. Start 2025 off...
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December 20, 2024
Novartis, the company now leading the investigational stem cell gene therapy trial for cystinosis, has shared a new community...
Read moreBy Cystinosis Research Network
October 24, 2024
The Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
Read moreThe CRN-funded QUALIFY-US study, also known as the Quality of Life study, is wrapping up this month. Our researchers...
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