News & Events

Cystaran Eyedrops Important Storage Update

News from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...

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UK’s Medical Health Council Awards Grant for CF10 Trial in Cystinosis 

The next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...

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Now Enrolling: Study on Swallowing and Muscle Strength in Cystinosis

The Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...

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Now Recruiting: Control Group for Stem Cell Transplant Study in Cystinosis

Emory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial.  While...

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CRN Impact Statement: New Phase of Stem Cell Trial for Cystinosis Opens for Children Ages 2–5

A new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...

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Recordati Unveils Cystadrops CystaTouch™ Dropper

For our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...

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