News & Events

UK’s Medical Health Council Awards Grant for CF10 Trial in Cystinosis 

The next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...

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Now Enrolling: Study on Swallowing and Muscle Strength in Cystinosis

The Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...

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Now Recruiting: Control Group for Stem Cell Transplant Study in Cystinosis

Emory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial.  While...

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CRN Impact Statement: New Phase of Stem Cell Trial for Cystinosis Opens for Children Ages 2–5

A new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...

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Recordati Unveils Cystadrops CystaTouch™ Dropper

For our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...

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Clinical Trial Announcement: CYStem for Nephropathic Cystinosis

Novartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...

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