My daughter, Deanna Lynn, was diagnosed with cystinosis 46 years ago in Houston, TX. At that time I did...
read moreThe CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...
read moreSupport the first annual Miles for Moose fundraiser.
read moreGlobal Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...
read moreAVROBIO has released a brochure providing detail on investigational gene therapies for lysosomal storage disorders. Earlier this year, AVROBIO’s...
read moreAVROBIO has announced the first patient has been dosed in the company’s Phase 1/2 trial of AVR-RD-04, an investigational...
read moreOver the last few years, Carter’s family has taken a strong interest in monarch butterflies. Post diagnosis, Grandmom (Carrie)...
read morePeople from around the world joined the CRN Family Conference this summer to help “Ring in the Future”. Here...
read moreCRN will join the American Society for Nephrology (ASN) and more than 13,000 other kidney professionals from across the...
read moreFollowing much consideration, Cystinosis Network Europe (CNE) and Cystinosis Ireland have decided to cancel the in-person International Cystinosis Conference...
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