Beginning September 15, 2020, Recordati Rare Diseases announced the availability of CYSTADROPS across the United States. CYSTADROPS are a...
Read moreBy Cystinosis Research Network
September 24, 2020
To address the shortage of Cystaran eye drops some members of our community may have encountered recently, Leadient Biosciences...
Read moreBy Cystinosis Research Network
September 2, 2020
Recordati announced approval of an eye drop treatment to reduce corneal crystals. “We are pleased to bring Cystadrops® to...
Read moreBy Cystinosis Research Network
August 25, 2020
The next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
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