Procysbi is now available for U.S. patients with cystinosis in microbead packets. You can find more information along with...
Read moreBy Cystinosis Research Network
April 28, 2020
The CRN 2021 Family Conference will be hosted in Nashville, Tennessee (U.S). Please visit our events page for details...
Read moreBy Cystinosis Research Network
April 28, 2020
On April 25th, a free online conference is being provided by Cystinosis Network Europe (CNE) and Cystinosis Ireland. The...
Read moreBy Cystinosis Research Network
April 8, 2020
The next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
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