On October 21, 2023, the Advanced Therapies Program will host the 9th Annual WORLDFair. Open to both patients and...
Read moreBy Cystinosis Research Network
October 5, 2023
Healogix Market Research would like to hear from the cystinosis community. If you use *or have used* Cystadrops and...
Read moreBy Cystinosis Research Network
August 25, 2023
Researchers, clinicians, industry and advocacy representatives attending CRN Nashville have been invited to exhibit research findings, treatment breakthroughs, and...
Read moreBy Cystinosis Research Network
July 5, 2023
Recordati Rare Diseases announced the launch of a new educational website: www.cystinosisinfocus.com. The site aims to help families manage...
Read moreAmgen has partnered with Believe Limited and the Cystinosis Research Network to bring back the third annual, Speak Up,...
Read moreAs of October 6, 2023, Amgen officially acquired Horizon Therapeutics. For our cystinosis community using PROCYSBI as a therapeutic...
Read moreThe long awaited Cystinosis Advocate Newsletter is here. Choose from research updates, advocacy efforts, family stories, events, cystinosis support...
Read moreIn May 2023, Novartis acquired the investigational autologous hematopoietic stem cell (HSC) gene therapy program for the treatment of...
Read moreCelebrate Halloween from home this year. ALAB invites you to a free, online event that will test your spooky...
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