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Health Canada approved the first cysteamine eye drop solution to help people living with cystinosis. Read more…
Read moreBy Cystinosis Research Network
March 13, 2019
February 28, 2018 Gear up for Rare Disease Day and request your FREE cystinosis ribbon temporary tattoo and start...
Read moreBy Cystinosis Research Network
February 13, 2019
The Cystinosis Ireland Seedcorn Funding scheme aims to provide researchers with the opportunity to generate solid preliminary data which...
Read moreBy Cystinosis Research Network
January 30, 2019
On February 3, 2021, Leadiant and the Cystinosis Research Network held a Town Hall to address the CYSTARAN eye...
Read moreAVROBIO Announces 100% Kidney Substrate Reduction at 12 Months Post-Gene Therapy in...
Read moreThanks in part to volunteers at both the 2017 and 2019 CRN Family Conferences, this study was able to...
Read moreAn announcement from Horizon Therapeutics: With the growing dry ice shortage there has been an increased demand for NanoCool...
Read moreChildren’s Friend Inc. is studying the experiences in and barriers to accessing mental health services for families. For the...
Read moreMembers of the CRN’s Medical Advisory Board and Scientific Advisory Board weighed in on their thoughts regarding the COVID-19...
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