Please click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...
Read moreBy Cystinosis Research Network
May 24, 2021
Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.
Read moreBy Cystinosis Research Network
May 12, 2021
The CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...
Read moreBy Cystinosis Research Network
May 12, 2021
The next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
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