In a quarterly update, AVROBIO announced: “Data from the patients dosed to date across three indications continue to...
Read moreBy Cystinosis Research Network
August 17, 2021
The Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...
Read moreBy Cystinosis Research Network
August 11, 2021
Today (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...
Read moreBy Cystinosis Research Network
July 16, 2021
A newly approved eye drop solution will expand treatment options for people living with cystinosis in Canada. Targeting corneal...
Read moreThe Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and...
Read moreNews from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
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