Children’s Friend Inc. is studying the experiences in and barriers to accessing mental health services for families. For the...
Read moreBy Cystinosis Research Network
December 21, 2020
Members of the CRN’s Medical Advisory Board and Scientific Advisory Board weighed in on their thoughts regarding the COVID-19...
Read moreBy Cystinosis Research Network
December 16, 2020
Now more than ever, our world relies on technology to stay connected. The Cystinosis Research Network (CRN) has partnered...
Read moreBy Cystinosis Research Network
December 8, 2020
Recordati Rare Diseases announced the launch of a new educational website: www.cystinosisinfocus.com. The site aims to help families manage...
Read moreAmgen has partnered with Believe Limited and the Cystinosis Research Network to bring back the third annual, Speak Up,...
Read moreAs of October 6, 2023, Amgen officially acquired Horizon Therapeutics. For our cystinosis community using PROCYSBI as a therapeutic...
Read moreThe long awaited Cystinosis Advocate Newsletter is here. Choose from research updates, advocacy efforts, family stories, events, cystinosis support...
Read moreIn May 2023, Novartis acquired the investigational autologous hematopoietic stem cell (HSC) gene therapy program for the treatment of...
Read moreCelebrate Halloween from home this year. ALAB invites you to a free, online event that will test your spooky...
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