Today (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...
Read moreBy Cystinosis Research Network
July 16, 2021
Please click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...
Read moreBy Cystinosis Research Network
May 24, 2021
Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.
Read moreBy Cystinosis Research Network
May 12, 2021
News from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
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