This summer we reached a milestone – over $40,000 in scholarships awarded since our program’s inception. Congratulations to the...
Read moreBy Cystinosis Research Network
September 29, 2021
Members of the CRN’s Scientific Review Board have compiled articles for those interested in learning more about an additional...
Read moreBy Cystinosis Research Network
August 18, 2021
In a quarterly update, AVROBIO announced: “Data from the patients dosed to date across three indications continue to...
Read moreBy Cystinosis Research Network
August 17, 2021
The Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
Read moreThe CRN-funded QUALIFY-US study, also known as the Quality of Life study, is wrapping up this month. Our researchers...
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