In the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...
Read moreBy Cystinosis Research Network
May 7, 2021
In honor of Cystinosis Awareness Day – May 7 – Leadiant Biosciences is commemorating this event with a letter...
Read moreBy Cystinosis Research Network
May 7, 2021
Angel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...
Read moreBy Cystinosis Research Network
March 9, 2021
The next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
Read more