The person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...
Read moreBy Cystinosis Research Network
December 3, 2019
I first heard of cystinosis in 2016. It was Spring, I felt. Or it should have been—life metamorphoses are...
Read moreBy Cystinosis Research Network
November 30, 2019
Life with a chronic disease can be stressful to say the least. My most frustrating moments are when I’m...
Read moreBy Cystinosis Research Network
November 30, 2019
A newly approved eye drop solution will expand treatment options for people living with cystinosis in Canada. Targeting corneal...
Read moreThe Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and...
Read moreNews from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
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