The great givers in my life are my family. I was born with a rare kidney disease known within...
Read moreBy Cystinosis Research Network
November 27, 2019
What started as a cystinosis awareness effort turns into a life-changing encounter. It all started with Jana (my twin...
Read moreBy Cystinosis Research Network
November 27, 2019
For the fifth consecutive year, the CRN is a proud participant in Giving Tuesday – a day encouraging people...
Read moreBy Cystinosis Research Network
November 20, 2019
News from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
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