The Cystinosis Ireland Seedcorn Funding scheme aims to provide researchers with the opportunity to generate solid preliminary data which...
Read moreBy Cystinosis Research Network
January 30, 2019
Support Bill Brink, an adult living with cystinosis, as he hosts “Stand Up to Cystinosis” a friendly weight lifting...
Read moreBy Cystinosis Research Network
January 29, 2019
Living with cystinosis has earned Chandler Moore a few battle wounds. After mulling over a way to symbolize the...
Read moreBy Cystinosis Research Network
January 29, 2019
News from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
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