Genetic testing is now being offered to cystinosis families at a discounted rate. However, you may be wondering, who...
Read moreBy Cystinosis Research Network
June 19, 2019
In order to think of what Cystinosis Awareness Day means to me I had to think about what cystinosis...
Read moreBy Cystinosis Research Network
May 7, 2019
A white blood cell (WBC) test helps monitor cystine levels important in managing cystinosis. Information about the test and...
Read moreBy Cystinosis Research Network
April 5, 2019
A newly approved eye drop solution will expand treatment options for people living with cystinosis in Canada. Targeting corneal...
Read moreThe Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and...
Read moreNews from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
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