Join us as we celebrate the 7th Annual Cystinosis Awareness Day with an electrifying regional meetup, courtesy of the...
Read moreBy Cystinosis Research Network
April 5, 2024
The New York Academy of Medicine is the location for this “first of its kind” event for healthcare professionals...
Read moreBy Cystinosis Research Network
March 28, 2024
On the heels of #WorldKidneyDay we congratulate Dr Roz Mannon on her Medal of Excellence. This is one of...
Read moreBy Cystinosis Research Network
March 20, 2024
The Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
Read moreThe CRN-funded QUALIFY-US study, also known as the Quality of Life study, is wrapping up this month. Our researchers...
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