The Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...
Read moreBy Cystinosis Research Network
August 11, 2021
Today (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...
Read moreBy Cystinosis Research Network
July 16, 2021
Please click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...
Read moreBy Cystinosis Research Network
May 24, 2021
The Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
Read moreThe CRN-funded QUALIFY-US study, also known as the Quality of Life study, is wrapping up this month. Our researchers...
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