In the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...
Read moreBy Cystinosis Research Network
May 7, 2021
In honor of Cystinosis Awareness Day – May 7 – Leadiant Biosciences is commemorating this event with a letter...
Read moreBy Cystinosis Research Network
May 7, 2021
Angel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...
Read moreBy Cystinosis Research Network
March 9, 2021
A newly approved eye drop solution will expand treatment options for people living with cystinosis in Canada. Targeting corneal...
Read moreThe Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and...
Read moreNews from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
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