On March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...
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March 8, 2021
Cystinosis Ireland and the CRN are delighted to announce they will jointly fund research project entitled “Perturbations in the...
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February 27, 2021
February 12, 2021Dear Cystinosis Community: We wanted to share an update from Leadiant Biosciences regarding the CYSTARAN® (cysteamine ophthalmic...
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February 15, 2021
A newly approved eye drop solution will expand treatment options for people living with cystinosis in Canada. Targeting corneal...
Read moreThe Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and...
Read moreNews from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
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