Children’s Friend Inc. is studying the experiences in and barriers to accessing mental health services for families. For the...
Read moreBy Cystinosis Research Network
December 21, 2020
Members of the CRN’s Medical Advisory Board and Scientific Advisory Board weighed in on their thoughts regarding the COVID-19...
Read moreBy Cystinosis Research Network
December 16, 2020
Now more than ever, our world relies on technology to stay connected. The Cystinosis Research Network (CRN) has partnered...
Read moreBy Cystinosis Research Network
December 8, 2020
The Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
Read moreThe CRN-funded QUALIFY-US study, also known as the Quality of Life study, is wrapping up this month. Our researchers...
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