What started as a cystinosis awareness effort turns into a life-changing encounter. It all started with Jana (my twin...
Read moreBy Cystinosis Research Network
November 27, 2019
For the fifth consecutive year, the CRN is a proud participant in Giving Tuesday – a day encouraging people...
Read moreBy Cystinosis Research Network
November 20, 2019
Global Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...
Read moreBy Cystinosis Research Network
October 28, 2019
The next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
Read moreA new chapter in cystinosis research has begun. Novartis has officially opened the next phase of its CYStem Phase...
Read moreFor our families using Cystadrops, we received the following information from Recordati. This update was in response to direct...
Read moreNovartis has announced the Phase I/II CYStem clinical trial will recruit children ages 2-5 with nephropathic cystinosis. The trial...
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